Get me to the church on time

This week we are going back to Scotland for my sisters wedding, M and E her brother each excited in their own ways, E to see his cousins and hang out with his favorite Uncle and M to wear a party dress and go to a wedding. Lately every doll or toy has to get married, she loves like most little girls the idea of dresses and flowers and romance. This burgeoning interest in all things romantic in cute boys and being in love is normal and developmentally appropriate and breaks my heart.
That might seem like a rather over the top reaction from me but it cuts deeply to the fear of future that all parents of kids like M have, M is, as it happens extremely pretty and naturally flirtatious, qualities that often confuse people into not realizing the depth of her disabilities her looks bring her a lot of positive attention but are such a double edged sword for her vulnerability as a special needs kid on the brink of puberty.Reality is she will most likely never get married herself but will most likely fall in love and have huge romantic crushes, how to protect her though all of that and find an independent life for her feels this week of the wedding like a heavier than usual weight. The only thing to do is resist the indulgence of future speculation and get back to the here and now of packing her pretty dress and go dance up a storm at the wedding, waltz on.

Arrested development

Back in 2007 I thought I would blog about my daughter M, her severe developmental delays and the strangeness of navigating our life around them, then I stopped after one post. I then thought about starting again in 2009 then stopped once more due to the voice in my head telling me this stuff is too personal and one more personal narrative out in the webosphere is a truly unnecessary thing. Well finally have put an internal gag in place once again. It is however now April 2010 I think fair to say M not the only one suffering developmental delays.